Trump Launching a New Private Health Tracking System With Big Tech's Help
- Reference: 0178528140
- News link: https://science.slashdot.org/story/25/07/31/2232230/trump-launching-a-new-private-health-tracking-system-with-big-techs-help
- Source link:
> The Trump administration [2]announced it is launching a new program that will [3]allow Americans to share personal health data and medical records across health systems and apps run by private tech companies , promising that will make it easier to access health records and monitor wellness. More than 60 companies, including major tech companies like Google, Amazon and Apple as well as health care giants like UnitedHealth Group and CVS Health, have agreed to share patient data in the system. The initiative will focus on diabetes and weight management, conversational artificial intelligence that helps patients, and digital tools such as QR codes and apps that register patients for check-ins or track medications.
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> Officials at the Centers for Medicare and Medicaid Services, who will be in charge of maintaining the system, have said patients will need to opt in for the sharing of their medical records and data, which will be kept secure. Those officials said patients will benefit from a system that lets them quickly call up their own records without the hallmark difficulties, such as requiring the use of fax machines to share documents, that have prevented them from doing so in the past.
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> Popular weight loss and fitness subscription service Noom, which has signed onto the initiative, will be able to pull medical records after the system's expected launch early next year. That might include labs or medical tests that the app could use to develop an AI-driven analysis of what might help users lose weight, CEO Geoff Cook told The Associated Press. Apps and health systems will also have access to their competitors' information, too. Noom would be able to access a person's data from Apple Health, for example. "Right now you have a lot of siloed data," Cook said.
[1] https://slashdot.org/~fjo3
[2] https://www.cms.gov/newsroom/press-releases/white-house-tech-leaders-commit-create-patient-centric-healthcare-ecosystem
[3] https://apnews.com/article/trump-ai-rfk-jr-health-tech-fa73703bd1fd557c787ef0b590e151f1
Right (Score:4, Insightful)
This totally won't be used to spy on women who get abortions, people who seek gender affirming care, or other mental health issues. Let me guess, the first question it asks is your citizenship status?
Re: Right (Score:3, Insightful)
It's big government big brother spying with help from his wealthy corporate pals. Super deep state brought to you by trump, apple and jazzercise.
Except Trump currently violating the privacy (Score:5, Insightful)
He is ignoring the privacy of all undocumented people, using health information to track them down. Note, this is not just for people that have been convicted, but for accused.
Given his current practices only an idiot would give anyone access to their health information, rather get the info yourself and hand deliver it to the people that need it.
Sounds like the "Epic" healthcare system (Score:2)
I visited another unrelated medical group last month. It was independent of my primary medical group. They had access to ALL of my medical history and prescriptions *without my permission given*. The system's name is "Epic" and is used in California and likely other states.
Re: (Score:3, Informative)
Epic has an opt-in for sharing your data with other independent-but-also-an-Epic-client groups. I'm guessing that, at some point, you probably did check that box. At least, I know when I changed docs a couple years ago, my new doc tried but could not access my previous info - until I went in to the system myself and enabled it.
Another possibility is that the two independent groups are either subsidiaries of a shared parent, or else both are getting their Epic access from a single source.
Re: (Score:2)
Neither case is true. I didn't give permission and the medical groups are completely unrelated.
Re: Sounds like the "Epic" healthcare system (Score:3)
This is exactly where the problem lies. There's a set of standards defined by an ANSI-certified group called HL7 that should make it all possible to transfer medical data. But the vendors, eg Epic, want to keep control, charge for exchange.
When I walk into a specialist's office, I should be able to click on the health info sharing app, select WHAT data to share, tap the NFC device on the receptionist's counter, do the MFA shuffle, then OK yes share that data with that provider.
Re: (Score:1)
You gave permission for that. Medical offices dont play around with HIPAA violations. Did you file a complaint? What was the resolution?
Tell your congresscritters: (Score:5, Interesting)
1) patients must control who sees what. Your dentist doesn't need to know you went to Illinois for an abortion, gender counseling, etc.
2) No AI harvesting. No marketing. No ad targeting based on your medical data.
3) only medical treatment should be able to request medical data. Not your landlord, not your educators, not your employer
4) it's your private data, it has to be carefully controlled.
Re: (Score:2)
I also understand that the Trump administration is illegally consolidating all information on ALL Americans now. If you ever filled out a government form, and then a different one, they will be combined now. This feels very NAZI like, and honestly, I am scared. I want to just slide underneath the radar and live my life.
Re: (Score:2)
Laws change, interpretations of laws change, enforcement of laws change. Once the data exists in their control there is no clawing it back.
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That just makes my head spin. The thing that makes America Great is that we have(had) a Rule of Law. That everybody is held up to one set of rules.
For you to say that things change, no, that is just wrong.
The Republicans could care less (Score:2)
About what you tell them. By electing Trump you have signaled to them that 34 felonies and 26 credible Rape accusations isn't a deal breaker in the face of overwhelming propaganda and a handful of moral panics.
So if you are contacting a republican they could care less what you tell them. The Democrats will care but they will not act outside of the Overton window, meeting the acceptable political discourse. And privacy regulations are outside the Overton window because any serious discussion of them imme
Re: (Score:2)
The insight that I have is that America is an Oligarchy now. The House and Senate should be local, however, now it is Billionaires who is electing them. If one politician steps out of line with what an Oligarch thinks, they get "primaried". I think it sucks how I can not elect a representative, nor a senator, who reflects my beliefs. They all reflect the opinion of an Oligarch. The oligarchs don't even live in my State, and they don't care about what I care about.
Re: (Score:2)
> By electing Trump you have signaled to them that 34 felonies and 26 credible Rape accusations isn't a deal breaker in the face of overwhelming propaganda and a handful of moral panics.
34 felonies? Care to share what the underlying felony was that elevated the 34 misdemeanors that were well-past their statutory limit was? Leticia James seems incapable of explaining that.
And define "credible" - the most famous case, the case of E Jean Carrol, the victim couldn't even remember what YEAR she was allegedly attacked - is that "credible"? And I'm pretty sure you inflated 26 claim of sexual abuse, ranging from looking lustfully to groping and made them all rapes.
You don't have to like Trump, but
Re: (Score:2)
You should check out CNN. Only listening to FOX "news" makes you stupid.
Re: (Score:2)
Listening to CNN makes you misinformed.
"You don't have to like Trump, but when you lie about what he's done you only undermine any influence your argument might have over anyone."
And this is the reason I pretty much don't believe a word of anything any more when it comes to Trump or politics in general. And now, since the 34 felonies nonsense, I find I can't even believe the results of court proceedings. The trial was massively flawed, so I have to wait until 27 different appeals courts all disagree abo
Re: (Score:2)
The goal of the Trump and Russian misinformation game is to make you just not believe in anything. To make your mind melt. Go back to the Original Documents of the United States of America. The Constitution of the United States. WE the People... Read Benjamin Franklin writings. The greatness that we can be. Don't buy into the trump mish mash bullshit of lies.
experience with CVS's IT (Score:3)
Well, let's see what my experience has been over 20 years: (1) their webpage didn't show one of my prescriptions. The tech support person said "I see it, but it's not the same as the screenshot you sent me." To her credit, she worked really hard for about 6 weeks, before finally punting this to their Tier 2 tech support. The Tier 2 people promptly changed my password and forgot to tell me. (2) The voice response system would not offer one of my prescriptions when it was time to renew. I always had to "add another prescription" and manually enter the Rx number. (3) The voice response system was also very sensitive to background noise. (4) No matter how many times I said "DO NOT AUTO-REFILL" and the pharmacy clerks removed that, their automated system would auto-order prescriptions, often a month or more before I needed it. (Of course, the one I would want auto-ordered was the one from #2 that the system never would order without my calling it in.) (5) Then the voice response system removed the "speak to pharmacist" option, replacing it was "leave a message and maybe we'll call you back." (6) The latest change was all voice, no "say Yes or press 1". That system hung up on me when I tried to refill a prescription. And I watched the people behind the counter struggle too. "Oh, we can't do this here, you have to go to another terminal where I log into a different system" I could see they were as frustrated as I was.
When the auto system hung up on me (without ordering my refill), that was the final straw. I switched to a local grocery store pharmacy. They CAN'T BE ANY WORSE. CVS is the only company I've been a customer of where the IT got PROGRESSIVELY WORSE OVER TIME.
And they're going to fix national heath care? That alone would make me consider moving back to Canada and its health system... (But as bad as CVS is, they're just incompetent. Palantir scares the shit out of me.)
I am glad I live on primitive LatAm (Score:2)
Where my medical history is in the form of paper, plastic and CDs that doctors give me. That's shit, but is less shit than Apple or Noom geting my labs by using incessant pushing and dark patterns..
In the USoA,IIRC, the department of Veteran Affaires had a FOSS system that could allow medical institutions (not silicon valley gallavanting cow-boys) share data between themselves, on a need to know basis, but the initiative was never driven to fruition neither by elephants nor by mules. That, I'd have gotten b
Re: (Score:2)
Apple can have my lab work. What do I care? What are they going to do? Charge me more because my health sucks?
Re: (Score:2)
Combine that with all of your information as to what you eat, where you drive, and the Trump administration may say that you are just harming yourself, and you do not deserve any health care, or food, or shelter.
Me personally, I would like the Government of the USA to be like the Biden Administration, where I felt like they put opportunities in front of me, instead of worrying about being punished for something I might have done in the past.
Allow is a funny way to spell require (Score:2)
But Trump never was good at spelling. Or reading. Or anything really.
I am looking forward to the cult coming up with justifications why this is okay though.
If the Democrats actually had a proper propaganda machine then Republican spaces would be filled with this and talk of the mark of the beast. But we don't so...
Re: (Score:2)
> Just pretend Obama or Biden pushed this.
Obama did propose this. The reason it didn't happen? It was felt it concentrated too much information in places that could not or would not be effectively controlled, and thus would be abused. Recall please, NO WHERE in US history has law enforcement or information sharing not been abused. You should be able to recall what happened when DOGE did a data suck on Social Security records without understanding the unstructured use of metadata in the record itself (using an impossible birth date to signify they d
I'll make it easy (Score:2)
No need to track me. I'll just tell you.
My health really sucks. I have a terminal illness and expect to be dead in 6-12 months.
So, stick that in your algorithm and see what it says.
Re: (Score:2)
I actually envy you. I would like to know when I will die. I feel like I may be dead tomorrow, or 30 years from now. You have doctor? eh, I do not. I think... I live. . then I die.. yup. It is what it is.
Nothing new (Score:2)
Haven't we been talking about this since before so-called Obamacare?
> A provision of the comically named “Affordable Care Act” (Obamacare) mandates all health care providers adopt Electronic Health Records (EHR). That mandate followed a 1997 agreement between EHR developers and the Clinton's Food and Drug Administration. Like most “progressive” (meaning marxist/socialist) ideas, EHR was based on a theory that doesn’t actually work. The theory was that EHR would enhance the quality of care.
Hillary and Bill started the ball rolling, Obama made it a part of Obamacare, and now Trump is embracing the idea... OH NO!!!
I'm curious, where do people think their health records are currently? In a box of paper in their doctors office or are they in their doctors (private) electronic health records system?
It's funny to see how many people can't quite grasp the concept that funding PRIVATE EHR systems DOESNT put their health records in th
Re: (Score:2)
Providers and insurers standardizing on electronic health records for internal use and as-needed sharing is not the same as having them all stored in a centralized system, accessible by a wider variety of people, providers, insurers and agencies - and probably [1]ICE [slashdot.org].
[1] https://slashdot.org/comments.pl?sid=23757654&cid=65559294
Why Am I Always 180 Degrees Out of Phase? (Score:2)
I read the synopsis and thought, "Hey, great! If I'm travelling, and end up bleeding to death in Bug Tussle, Nowhere, the doctors there will be able to bring up the fact that I'm using the blood thinner Xarelto, and maybe be able to administer an appropriate coagulant." I was told that this golly-gee-whiz blood thinner was very effective and didn't require diet restrictions I would find difficult (I don't cook), so I continued with it because it fit my lifestyle. But I was also told at the time there is
Secure, except ... (Score:2)
> Officials at the Centers for Medicare and Medicaid Services, who will be in charge of maintaining the system, have said patients will need to opt in for the sharing of their medical records and data, which will be kept secure.
Except for any data accessed by ICE... which should bother everyone.
[1]ICE Is Getting Unprecedented Access to Medicaid Data [wired.com]
> A new agreement viewed by WIRED gives ICE direct access to a federal database containing sensitive medical data on tens of millions of Americans, with the goal of locating immigrants.
> Per the agreement, ICE officials will get login credentials for a Centers for Medicare and Medicaid Services (CMS) database containing sensitive medical information, including detailed records about diagnoses and procedures. Language in the agreement says it will allow ICE to access personal information such as home addresses, phone numbers, IP addresses, banking data, and social security numbers. (Later on in the agreement, what ICE is allowed to access is defined differently, specifying just “Medicaid recipients” and their sex, ethnicity, and race but forgoing any mention of IP or banking data.) The agreement is set to last two months. While the document is dated July 9, it is only effective starting when both parties sign it, which would indicate a 60-day span from July 15 to September 15.
> The agreement allows ICE to retain any Medicaid data for as long as the agency deems it necessary. The document clarifies that this agreement can be renewed for “consecutive periods,” and that ICE also can share the data so long as the agency specifies who the recipients are in writing.
[1] https://www.wired.com/story/ice-access-medicaid-data/
Re: (Score:2)
To me ICE and NAZI rhyme... Masked idiots grabbing people off of the streets. Throwing them in confined spaces. Maybe killing them. This is not the America that I grew up in and the America that I love.
What ever happened to confidentiality? (Score:2)
I recall a time when my medical history was between me my doctor and God. How easily we have given up our privacy.
Re: (Score:2)
I grew up in the 80's when surveillance was very expensive. I felt safer. Now I know that everywhere I go is tracked by someone. That makes me feel less safe.
The pig needs more lipstick (Score:2)
Never mind that we have the most unaffordable, miserable excuse of a healthcare system out of any of the supposedly first-world nations. Yep, what we truly needed is *checks notes* big tech getting in on the for-profit medical data privacy rape-a-thon .
It's like some Republican ass kisser somewhere said "Hey, remember when Chevrolet was selling their OnStar telemetry data to a broker, which then in turn resold it to insurers? What if we did the same thing, but with health data?"
Re: (Score:2)
No shit.
Trump (Score:3)
Like I care about his opinion of what's healthy.
Re: (Score:2)
Oh, yeah. The Whooper comes with a tomato... But it's opt-out.
Re: (Score:3)
Don't be silly. It will be a well known medical expert; Robert F Kennedy Jr.