23andMe's Data Sold to Nonprofit Run by Its Co-Founder - 'And I Still Don't Trust It' (msn.com)
- Reference: 0178414908
- News link: https://science.slashdot.org/story/25/07/19/0252236/23andmes-data-sold-to-nonprofit-run-by-its-co-founder---and-i-still-dont-trust-it
- Source link: https://www.msn.com/en-us/money/companies/23andme-is-out-of-bankruptcy-you-should-still-delete-your-dna/ar-AA1ILWfK
"Now it's back with the same person in charge — and I still don't trust it."
> As of this week, genetic data from the more than 10 million remaining 23andMe customers has been formally [3]sold to an organization called [4]TTAM Research Institute for $305 million. That nonprofit is run by the person who co-founded and ran 23andMe, Anne Wojcicki. In a recent email to customers, the new 23andMe said it "will be operating with the same employees and privacy protocols that have protected your data." Never mind that Wojcicki and her privacy protocols are what put your DNA at risk in the first place...
>
> The company is legally obligated to maintain and honor 23andMe's existing privacy policies, user consents and data protection measures. And as part of a [5]settlement with states , TTAM also agreed to provide annual privacy reports to state regulators and set up a privacy board. But it hasn't agreed to take the fundamental step of asking for permission to acquire existing customers' genetic information. And it's leaving the door open to selling people's genes to the highest bidder again in the future...
>
> Existing 23andMe customers have the right to delete their data or opt out of TTAM's research. But the new company is not asking for opt-in permission before it takes ownership of customers' DNA... Why does that matter? Because people who handed over the DNA 15 years ago, often to learn about their genetic ancestry, never imagined it might be used in this way now. Asking for new permission might significantly shrink the size (and value) of 23andMe's DNA database — but it would be the right thing to do given the [6]rocky history . Neil M. Richards [the Washington University professor who served as privacy ombudsman for the bankruptcy court], pointed out that about a third of 23andMe customers haven't logged in for at least three years, so they may have no idea what is going on. Some 23andMe users never even clicked "agree" on a legal agreement that allowed their data to be sold like this; the word "bankruptcy" wasn't added to the company's privacy policy until 2022. And then there is an unknown number of deceased users who most certainly can't consent, but whose DNA still has an impact on their living genetic relatives...
>
> [S]everal states have argued that their existing genetic privacy laws don't allow 23andMe to receive the information without getting permission from every single person. Virginia has an ongoing lawsuit over the issue, and the California attorney general's office told me it "will continue to fight to protect and vindicate the rights" of consumers....
Two more points of concern:
"There is nothing in 23andMe's bankruptcy agreement or privacy statement to prevent TTAM from selling or transferring DNA to some other organization in the future."
The article also notes [7]a 2023 data breach affecting 6.9 million users , arguing "They haven't shown they can keep your data safe... 23andMe's financial struggles could make it hard to run a robust cybersecurity program."
[1] https://science.slashdot.org/story/25/06/11/214242/23andme-says-15-of-customers-asked-to-delete-their-genetic-data-since-bankruptcy
[2] https://www.msn.com/en-us/money/companies/23andme-is-out-of-bankruptcy-you-should-still-delete-your-dna/ar-AA1ILWfK
[3] https://www.npr.org/2025/06/30/nx-s1-5451398/23andme-sale-approved-dna-data
[4] https://ttamresearchinstitute.org/
[5] https://www.washingtonpost.com/business/2025/06/10/23andme-genetic-dna-privacy-bankruptcy/
[6] https://css.washingtonpost.com/technology/2025/03/25/23andme-collapse-dna-data/
[7] https://it.slashdot.org/story/23/12/04/1911229/23andme-confirms-hackers-stole-ancestry-data-on-69-million-users
Customers could delete their data? (Score:1)
ref: [1]https://youtu.be/bDh_rJv_b1g?f... [youtu.be]
"That's not entirely accurate" - Independence Day (1996)
Sen. Josh Hawley rips 23 and Me CEO a new one and exposed the lie that customers could delete their data.
[1] https://youtu.be/bDh_rJv_b1g?feature=shared
RSS Feed Not Working For Days ... (Score:1)
Hey Slashdot ...
The RSS feed stopped working on the 17th of July.
Check [1]the feed [slashdot.org] out yourselves ...
Or [2]the alternate feed [slashdot.org], same problem.
Unless you don't care about traffic from the feed then ...
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The idea of giving your genetic data (Score:2)
To anything not protected by HIPAA is nuts to me.
That data could easily be handed to the police and they could use it to tie you to a crime. You're then going to have to spend tens if not hundreds of thousands of dollars fighting them off while a prosecutor tries to get a notch in his belt for his upcoming political run.
Every year crime goes down but every year we put more cops on the street and give prosecutors more money.
Voters expect results but if crime is going to keep going down the only w
Too slow, they're already past that. (Score:3)
Okay, some thoughts on this:
1. The data has already been handed to the police. They've been using it to solve decades old rape cases and such.
2. Unless YOUR DNA turned up at a crime scene, it is unlikely that the police are going to arrest you over it. Unless you have an evil twin out there, it's not a very realistic problem.
3. The problem is also actually WORSE than you state. You see, YOU don't need to submit data to be found. In a number of the cases, a semi-distant relative, like a niece, submitt
EditorDavid proving once again he's not an editor (Score:2)
"Never mind that Wojcicki and her privacy protocols are what put your DNA at risk in the first place."
No one's DNA is at risk, their personal information is. Why do people say such stupid things, and is is too much to ask for "editors" to do their job? This is literally what editors do, they identify these kinds of errors before they get published.
Re: (Score:2)
> No one's DNA is at risk, their personal information is
I can only imagine in this day and age, some unique aspect of your DNA going into a proprietary process or treatment with big money potential to not only get no financial compensation, but receive a cease and desist order too.
that would be quite a trick (Score:2)
"And it's leaving the door open to selling people's genes to the highest bidder again in the future..."
How exactly can a person's genes be sold? Do we have slavery once again? Unless you can buy and sell people, people's genes cannot be sold.
Re: (Score:2)
> "And it's leaving the door open to selling people's genes to the highest bidder again in the future..."
> How exactly can a person's genes be sold? Do we have slavery once again? Unless you can buy and sell people, people's genes cannot be sold.
Someday they will find the gene for autism.
Privacy. Ha! (Score:2)
> "Nearly 2 million people protected their privacy by deleting their DNA from 23andMe"
If these people cared about their privacy, and thought about it for a few minutes, they wouldn't have submitted samples to some DNA company in the first place without the ability to do it anonymously. And THEN thinking they could actually "delete" the information after the fact- HA!
Yes, I even investigated if there were a way to do this DNA stuff actually privately. And that would mean submitting anonymous samples that
Re: (Score:2)
EditorDave owes me a Model M.